CASDA knows these are unprecedented times for the disability community and wishes to support how we can building back better as a more coordinated sector emerging out of the COVID-19 crisis. To do so, since March 2020, CASDA has been coordinating autism-related data modules and pan-disability data collection initiatives to help select meaningful indicators, mitigate duplication, and ensure that collected information leads to action.

Disclaimer

We are curating a list of resources for researchers from our members in the research community. This list is not comprehensive and it has not been systematically reviewed.

If you think a resource is missing, please fill out this form to add to this page (click here for French).

For more information, email us at info@casda.ca.

Sections

  • Data Coordination 
  • Research Networks
  • Policy Briefs and Publications
  • Programs and Services 

Data Coordination

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The results in this report have been produced using data from the ISARIC COVID-19 database. The aim is to accelerate our collective understanding of COVID-19 to help improve patient care and inform public health policy. Huge thanks to our partners who are sharing data to this end. We welcome additional partners to collaborate in this effort.
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COVID-19 open-access data and computational resources are being provided by federal agencies, including NIH, public consortia, and private entities.
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The COVID-19 pandemic is causing major disruptions in service provision, participation, and overall well-being of people with disabilities and their families worldwide. As such, the International Alliance of Academies of Childhood Disability (IAACD) created a COVID-19 Task Force to understand the impact of COVID-19 and rapidly share strategies to optimize service provision around the world.  The Task Force has launched the Global COVID-19 Childhood Disability Data Coordination initiative, to collect information about ongoing and completed surveys addressing the impact of COVID-19.

Research Networks

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McGill has helped create a network of researchers, students, and web developers who launched a national portal to help those involved in COVID-19 research and development locate human resources, reagents, equipment and information in a timely manner.
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See if you can become a member of CanCOVID, an expert community of Canadian COVID-19 researchers, clinical collaborators, and healthcare stakeholders mandated by the Office of the Chief Science Advisor of Canada communicating over SLACK, an online platform. CanCOVID seeks to connect national research efforts in order to support collaboration, coordination, and communication between those working on projects related to COVID-19. The goal is to optimize our collective response to this public health crisis.

Policy Briefs and Publications

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General recommendations in including children with disabilities across humanitarian crises.
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UNESCAP (Asian) policy brief regarding disabilities and COVID.
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Recommendations for the Government of Australia to take action immediately because the Government has a targeted response for the aged care sector, but not for the disability sector. Both sectors have many similarities including congregated settings, a precariously employed and inadequately trained care workforce, and families and carers who may face significant challenges meeting the care needs of people with disability in Australia.
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The disability advocacy organizations identified below and a coalition of disability rights and emergency management experts from across the country are issuing an urgent call to action for immediate strategies and solutions from the federal government and governments at every level, including local, state, tribal and territorial, to address the specific needs of persons with disabilities throughout the COVID-19 outbreak and all public health emergencies.
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WHO policy recommendations for governments targeting
individuals with disabilities.
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Explains issues and provides recommendations for individuals with disabilities and their families.
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Not specific to COVID-19.
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International Disability Alliance Key Recommendations towards a Disability-Inclusive COVID-19 Response.
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Concerns about ableism in triage protocols include process and implementation, their design, and their end effects.
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COVID-19 has the seeds of a major mental health crisis.The mental health and wellbeing
of whole societies have been severely impacted by the COVID-19 pandemic and are a
priority to be addressed urgently.The historic underinvestment in mental health needs to be redressed without delay to reduce immense suffering among hundreds of millions of people and mitigate long-term social and economic costs to society. 
Public policy solutions:
(1)Apply a whole-of-society approach to promote, protect and care for mental health.
(2) Ensure widespread availability of emergency mental health and psychosocial support, and (3) Support recovery from COVID-19 by building mental health services for the future.
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A human rights-based approach to disability is required to ensure that no one is left behind. The UN has written recommendations on the collections and availability of disaggregated data by disability, the use of internationally recognized methods, and tools such as those from the Washington Group and the WHO Model Disability Survey.
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A list of issues that need to be addressed urgently to ensure the wellbeing of people with disabilities during the current COVID-19 public health emergency in Australia.
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UN policy recommendations tailored to individuals with disabilities and a resource list.
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The guidance aims to:(1) bring awareness of the pandemic’s impact on persons
with disabilities and their rights, (2) draw attention to promising practices being undertaken around the world, (3) identify key actions for States and other stakeholders, and (4) provide resources for further learning about ensuring
rights-based COVID-19 responses inclusive of persons with disabilities.
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WHO, OCHA, IFRC: recommendations in policy drafting for vulnerable groups.
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This editorial, published in the journal of Developmental Medicine & Child Neurology (open-access), invites researchers and clinicians working in the field of pediatric disability to advocate for clear standards on inclusive humanitarian responses in our communities during the COVID-19 pandemic. It guides a rights-based approach for disability data coordination, interpretation and actions during the COVID-19 pandemic.

Programs and Services

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Federal advisory group designed to inform Ministers on the real-time lived experiences of those with disabilities.
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Not COVID-19 Specific.
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