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Wednesday, April 18, 2018

7:30 – 8:30
Ottawa Salon
Registration Open and Networking Breakfast
8:30 – 9:05 Summit Opening

  • Emcee – Conference Chair

Debbie Irish, CASDA Director

  • Welcome to Algonquin Territory

Claudette Commanda, Executive Director, First Nations Confederacy of Cultural Education Centres

  • Opening Remarks 

The Honourable Ginette Petitpas Taylor, Minister of Health, Government of Canada

  • Welcome Remarks

Senator Jim Munson

9:05 – 10:05 Opening Session: Collaboration in Action

Across Canada there are examples where advocacy groups, service providers and governments are working together to bring about system changes. Effective collaboration by multiple stakeholders is required to achieve broad system change.  This session will highlight how stakeholder collaboration has informed the Ontario Autism Program (OAP). Panelists will provide an overview of how they brought about change and key elements of their success.

Representatives, Ministry of Children and Youth Services, Government of Ontario

10:05-10:20 Refreshment and Networking Break
10:20 – 10:50 National Autism Spectrum Disorders Surveillance Data: Using Data to Inform Our Work 

The National ASD Surveillance System (NASS) aims to address the impacts of ASD, such as health and social effects. It is being developed to track ASD among children and youth first and will eventually include adults living with ASD. NASS will provide the evidence to inform planning of services, research and programs.
The results will impact Canadians living with ASD as well as their families and caregivers.

Dr. Marianna Ofner, Scientific Advisor, Centre for Surveillance and Applied Research, Public Health Agency of Canada

10:50 – 11:20 Accessibility Legislation

Currently, one in seven Canadians has a disability, and that number is expected to grow with an aging population. It is clear that these barriers to accessibility can no longer be ignored. Legislation is being developed to help address these barriers and strive towards a more accessible Canada. This session will provide an overview of the Accessibility Legislation and how this legislation can support meaningful improvements to quality of life for individuals with disabilities.

James VanRaalte, Director General, Accessibility Secretariat

11:20 – 13:00 Lunch/Autism on the Hill/ Poster Viewing

  • Lunch Break (sandwiches – grab and go)
  • Attendees Walk to Parliament Hill
  • Autism on the Hill

QuickStart – Early Intervention for Autism

13:00 – 13:05 Introducing Spectrum LIVE
13:05-13:30 Canadian Autism Spectrum Disorders Alliance (CASDA)
Annual General MeetingSpeaker
Cynthia Carroll, Chair, CASDA
13:30-13:45 Ready, Willing and Able

The Canadian Association for Community Living (CACL) and the Canadian Autism Spectrum Disorders Alliance (CASDA) are very proud to be partners in the delivery of the Ready Willing and Able (RWA) initiative. RWA, is a project designed to increase the workforce participation of people with intellectual disabilities and ASD and funded by the Government of Canada.

Cynthia Carroll, Executive Committee, RWA

13:45-14:15 Sponsor Remarks: Autism Speaks Canada

Esther Rhee, National Program Director, Autism Speaks Canada

14:15-14:30 pm Refreshment and Networking Break
Wednesday, April 18th, 2018 Continued
Session : Mental Health Supports Across the Lifespan
Formal and informal mental health supports This panel will present a variety of perspectives related to supporting the mental health of an individual with autism. After the panel, Dr. Weiss will frame three question and tables will respond to the questions. A note taker from each table will capture the key ideas. Within 30 days of the Summit, CASDA will capture the responses into a short briefing note and share the briefing note with Summit attendees via email. The briefing note can be used to inform conversations with regional stakeholders on the opportunities to support mental health across the lifespan for individuals with ASD.Panelists
Allison Garber, Communications Professional, Parent
Daniel Share-Strom, Motivational Speaker
Jonathan A. Weiss, Ph.D., Associate Professor, York University, Department of Department of Psychology
Katelyn Lowe, Ph.D, Chief Strategy Officer, The Sinneave Family Foundation
Yona Lunsky, Clinician-Scientist, Adult Neurodevelopmental Services, Director of the Health Care Access Research and Developmental Disabilities (H-CARDD) Program, Centre for Addiction and Mental Health
16:00 – 19:00 Summit Reception on Parliament Hill

Reception Start – 17:00
Location – TBC

Registered conference attendees are welcome.
Please leave adequate time to clear security.
Government issued photo ID is required.



Thursday, April 19, 2018

7:45 – 8:15
Ottawa Salon
Room 214
Networking Breakfast
8:15-8:40 Summit Day Two

  • Emcee – Conference Chair

Debbie Irish, CASDA Director

  • Opening Remarks

Senator Wanda Thomas Bernard

  • Welcome Remarks

The Honourable Mike Lake

8:40-10:00 Indigenous Leadership and Innovation

This session will focus on effective engagement and partnerships in Indigenous communities. From advocacy and policy development to ground breaking funding agreements, partnerships with government and communities will be examined. Service barriers and solutions both on and off reserve, and perspectives on the challenges of urban and remote communities will be discussed. A review of a northern 5-year action plan will take participants to a discussion of next steps towards effective engagement and outcomes.

Corey O’Soup, Advocate for Children and Youth, Saskatchewan
Ken Robertson, Four Directions Autism, Chair
Seonag Macrae, CEO of Community Living British Columbia
Victorine Lafferty, Department of Health, Social Services and Disabilities; Department of Education, Culture and Employment, North West Territories
Wendy Trylinski,  Director of Public Health Education, Nishnawbe Aski Nation

10:00-11:30 Research to Practice: Showcasing Research in Canada

It is sometimes challenging to see a clear connection research and practice. These presenters will each provide a high-level overview of their research and how their work is making the leap into practice and impacting individuals with ASD and their families.

Evdokia Anagnostou, MD, Co-Lead Autism Research Centre, Bloorview Research Institute
Dr. Lonnie Zwaigenbaum, Professor & Director of Autism Research, Division of Developmental Pediatrics, Faculty of Medicine and Dentistry, University of Alberta
Mayada Elsabbagh, PhD, Assistant Professor, Department of Psychiatry, McGill University
Dr. Stelios Georgiades, PhD, Assistant Professor, Department of Psychiatry and Behavioral Neurosciences, McMaster University & Co-Director, McMaster Autism Research Team (MacART)
Steve Scherer, PHD, FRSC, Director, The Centre for Applied Genomics, The Hospital for Sick Children; Director, McLaughlin Centre,  University of Toronto

11:30-12:30 Lunch/Networking/ Poster Session 
12:30 – 13:30 The Intersection Between Research, Practice and Policy

Across Canada researchers are examining the effects of a variety of Naturalistic Developmental Behavioral Interventions (NDBI) with young children and their families. Three unique examples of this research are taking place in BC, Ontario, and Nova Scotia. Each project has evolved from distinctive collaborative partnerships between research, provincial systems of practice and policy development. This presentation will provide an overview of how each project was developed in each province; the status of the research in each location; and recommendations for next steps including the identification of potential facilitators and barriers to future policy development.

Karen Bopp PhD, Director, Autism Information Services British Columbia, BC Ministry of Children and Family Development

Isabel Smith PhD, Professor, Joan & Jack Craig Chair in Autism Research, Departments of Pediatrics and Psychology & Neuroscience, Dalhousie University
Jessica Brian PhD,  C.Psych. Co-Lead Autism Research Centre, Bloorview Research Institute, University of Toronto
Pat Mirenda PhD, Professor and Director, Centre for Interdisciplinary Research and Collaboration in Autism (CIRCA), University of British Columbia

13:30-14:30  National Autism Strategy – Next steps – Peer to Peer Session

Peer Groups: Researchers, Service Provider, Executive Directors, Public Sector, Parent/Caregiver, Educator, Registered Health Professional, Service Provider Front Line, Self-Advocate

14:30-14:45 Refreshment and Networking Break
14:45-15:45 Closing Session: First Voice Perspective

Bruno Hache
Corey Walker
Daniel Share-Strom
Jackie McMillan
Patricia George-Zwicker
Trudy Goold

15:45-16:00 Closing Remarks – Sponsor: The Sinneave Family Foundation

Last updated March 20, 2018 10:30 am MDT