SUMMIT AGENDA

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Wednesday, April 18, 2018
7:30 – 8:30
The Shaw Centre
Ottawa Salon
Registration Open and Networking Breakfast
8:30 – 9:05
Summit Opening
Emcee – Conference Chair
Debbie Irish, CASDA Director
Welcome to Algonquin Territory
Jerry LanouetteAlgonquin Elder’s Helper
Opening Remarks
The Honourable Ginette Petitpas Taylor, Minister of Health, Government of Canada
Welcome Remarks
9:05 – 10:05
Opening Session: Collaboration in Action
Across Canada there are examples where advocacy groups, service providers and governments are working together to bring about system changes. Effective collaboration by multiple stakeholders is required to achieve broad system change. This session will highlight how stakeholder collaboration has informed the Ontario Autism Program (OAP). Panelists will provide an overview of how they brought about change and key elements of their success.
Panelists
Bruce McIntosh, Ontario Autism Program Advisory Committee Member, President, Ontario Autism Coalition
Debra Kennedy, BSc.OT., M.R.Sc., OT Reg (Ont.), Ontario Autism Program Advisory Committee Member, Representing the Ontario Society of Occupational Therapists
Josh Hjartarson, Facilitator for the Ontario Autism Program Advisory Committee, Partner, Public Sector, KPMG Canada
Marg Spoelstra, Ontario Autism Program Advisory Committee Member, Executive Director, Autism Ontario
Sarah Hardy, Director, Ontario Autism Program Project Team, Ministry of Children and Youth Services
Sherry Fournier, Ontario Autism Program Advisory Committee Member, Executive Director, Child & Community Resources
10:05-10:20
Refreshment and Networking Break
10:20 – 10:50
National Autism Spectrum Disorders Surveillance Data:
Using Data to Inform Our Work
The National ASD Surveillance System (NASS) aims to address the impacts of ASD, such as health and social effects. It is being developed to track ASD among children and youth first and will eventually include adults living with ASD. NASS will provide the evidence to inform planning of services, research and programs.
The results will impact Canadians living with ASD as well as their families and caregivers.
Speaker
Dr. Marianna Ofner, PhD, Senior Advisor, Public Health Agency of Canada
10:50 – 11:20
Accessibility Legislation
Currently, one in seven Canadians has a disability, and that number is expected to grow with an aging population. It is clear that these barriers to accessibility can no longer be ignored. Legislation is being developed to help address these barriers and strive towards a more accessible Canada. This session will provide an overview of the Accessibility Legislation and how this legislation can support meaningful improvements to quality of life for individuals with disabilities.
Speaker
James VanRaalte, Director General, Accessibility Secretariat
11:20 – 13:00
Lunch/Autism on the Hill/ Poster Viewing
· Lunch Break (sandwiches – grab and go)
· Attendees Walk to Parliament Hill
· Autism on the Hill
QuickStart – Early Intervention for Autism
13:00-13:05
Introducing Spectrum LIVE
13:05-13:30
Canadian Autism Spectrum Disorders Alliance (CASDA)
Annual General Meeting
Speaker
Cynthia Carroll, Chair CASDA, Executive Director, Autism Nova Scotia
13:30-13:45
Ready, Willing and Able
The Canadian Association for Community Living (CACL) and the Canadian Autism Spectrum Disorders Alliance (CASDA) are very proud to be partners in the delivery of the Ready Willing and Able (RWA) initiative. RWA, is a project designed to increase the workforce participation of people with intellectual disabilities and ASD and funded by the Government of Canada.
Speaker
Cynthia Carroll, Chair CASDA, Executive Director, Autism Nova Scotia
 
13:45-14:15
Sponsor Remarks: Autism Speaks Canada
Speaker
Esther Rhee, National Program Director, Autism Speaks Canada
14:15-14:30 pm
Refreshment and Networking Break
Wednesday, April 18th, 2018 Continued
14:30-16:00
Session : Mental Health Supports Across the Lifespan
Formal and informal mental health supports
This panel will present a variety of perspectives related to supporting the mental health of an individual with autism. After the panel, Dr. Weiss will frame three question and tables will respond to the questions. A note taker from each table will capture the key ideas. Within 30 days of the Summit, CASDA will capture the responses into a short briefing note and share the briefing note with Summit attendees via email. The briefing note can be used to inform conversations with regional stakeholders on the opportunities to support mental health across the lifespan for individuals with ASD.
Panelists
Allison Garber, Parent, Owner of Allison Garber Communications
Daniel Share-Strom, Motivational Speaker
Jonathan A. Weiss, PhD, Associate Professor, York University, Department of Department of Psychology
Katelyn Lowe, PhD, Chief Strategy Officer, The Sinneave Family Foundation
Yona Lunsky, PhD, Clinician-Scientist, Adult Neurodevelopmental Services, Director of the Health Care Access Research and Developmental Disabilities (H-CARDD) Program, Centre for Addiction and Mental Health
16:00 – 19:00
Summit Reception on Parliament Hill
Reception Start – 17:00
Location – Wellington Building – 180 Wellington Street – Room: WE-430
Registered Summit attendees are welcome.
Please leave adequate time to clear security.
Government issued photo ID is required.
Thursday, April 19, 2018
7:45 – 8:15
The Shaw Centre
Ottawa Salon
Room 214
Networking Breakfast
8:15-8:40
Summit Day Two
· Emcee – Conference Chair
Debbie Irish, CASDA Director
· Opening Remarks
Senator – Nova Scotia, East Preston
· Welcome Remarks
8:40-10:00
Indigenous Leadership and Innovation
This session will focus on effective engagement and partnerships in Indigenous communities. From advocacy and policy development to ground breaking funding agreements, partnerships with government and communities will be examined. Service barriers and solutions both on and off reserve, and perspectives on the challenges of urban and remote communities will be discussed. A review of a northern 5-year action plan will take participants to a discussion of next steps towards effective engagement and outcomes.
Moderator
Keely Wight, Executive Director, Autism Resource Centre
Presenters
Bertha Sutherland, Nishnawbe Aski Nation Women’s Council
Corey O’Soup, Advocate for Children and Youth, Saskatchewan
Ken Robertson, Four Directions Autism, Chair
Seonag Macrae, CEO of Community Living British Columbia
Theresa Sutherland, Nishnawbe Aski Nation Women’s Council
Victorine Lafferty, Director, Seniors and Continuing Care Services, Health and Social Services, Government of the Northwest Territories
10:00-11:30
Research to Practice: Showcasing Research in Canada
It is sometimes challenging to see a clear connection research and practice. These presenters will each provide a high-level overview of their research and how their work is making the leap into practice and impacting individuals with ASD and their families.
Presenters
Evdokia Anagnostou, MD, Co-Lead Autism Research Centre, Bloorview Research Institute
Dr. Lonnie Zwaigenbaum, Professor & Director of Autism Research, Division of Developmental Pediatrics, Faculty of Medicine and Dentistry, University of Alberta
Mayada Elsabbagh, PhD, Montreal Neurological Institute, McGill University
Dr. Stelios Georgiades, PhD, Assistant Professor, Department of Psychiatry and Behavioral Neurosciences, McMaster University & Co-Director, McMaster Autism Research Team (MacART)
Stephen W. Scherer, PhD, DSc, FRSC
11:30-12:30
Lunch/Networking/ Poster Session
12:30 – 13:30
The Intersection Between Research, Practice and Policy
Across Canada researchers are examining the effects of a variety of Naturalistic Developmental Behavioral Interventions (NDBI) with young children and their families. Three unique examples of this research are taking place in BC, Ontario, and Nova Scotia. Each project has evolved from distinctive collaborative partnerships between research, provincial systems of practice and policy development. This presentation will provide an overview of how each project was developed in each province; the status of the research in each location; and recommendations for next steps including the identification of potential facilitators and barriers to future policy development.
Moderator
Karen Bopp, PhD, Director, Autism Information Services British Columbia, BC Ministry of Children and Family Development
Presenters
Isabel Smith, PhD, Professor, Joan & Jack Craig Chair in Autism Research, Departments of Pediatrics and Psychology & Neuroscience, Dalhousie University
Jessica Brian, PhD, Co-Lead Autism Research Centre, Bloorview Research Institute, University of Toronto
Pat Mirenda, PhD, Professor and Director, Centre for Interdisciplinary Research and Collaboration in Autism (CIRCA), University of British Columbia.
13:30-14:30
Working Together Toward a National Autism Strategy –  Peer to Peer Session
CASDA’s is committed to ensuring the implementation of a comprehensive National Autism Strategy that addresses critical gaps in funding and policies, which are preventing individuals with autism and their families from exercising their equal rights as Canadians. With the recent autism funding announced by the federal government in the 2018-19 budget this peer to peer session will engage attendees in what a National Autism Strategy would look like and how recently announced funding could help get us there.
Peer Groups: Researchers, Service Provider, Executive Directors, Public Sector, Parent/Caregiver, Educator, Registered Health Professional, Service Provider Front Line, Self-Advocate
Presenters
Cynthia Carroll, Chair CASDA, Executive Director Autism Nova Scotia
Margaret Spoelstra, Executive Director, Autism Ontario
14:30-14:45
Refreshment and Networking Break
14:45-15:45
Closing Session: First Voice Perspective – The Unspoken Price of Advocacy
Presenters
Daniel Share-Strom, Motivational Speaker
Jackie McMillan, BES, Asperger’s
Patricia George-Zwicker, Autism Nova Scotia, Editor Autistics Aloud
15:45-16:00
Closing Remarks – Sponsor: The Sinneave Family Foundation
Speaker
Tanya McLeod, President, The Sinneave Family Foundation
 Subject to Change – Last updated April 12, 2018 11:00 am MDT